“…to provide clients and care partners with tick-borne disease a place to find guidance and emotional support on a path to wellness”
“…to educate the community by providing: material, forums and workshops on the issues surrounding tick-borne disease.”
“…to advocate for better education, knowledge, treatment and awareness of tick-borne diseases.”
“…to connect tick-borne disease support and educational groups across Massachusetts and beyond.”
Navigating complex paperwork and insurance policies is nearly impossible for a patient coping with the severe fatigue, brain fog and pain of this chronic condition, which is becoming known as the “Great Imitator”, mimicking many diseases such as multiple sclerosis, ALS, chronic fatigue, fibromyalgia and other non-specific musculoskeletal and neurological diseases. The controversy over treatment and the existence of the chronic form of Lyme Disease combined with the skepticism and sometimes outright hostility, of people not suffering from this disease, a can cause a chronic Lyme patient to feel lost and alone. Care partners experience the same frustration as they try to obtain medical care, benefits and services for the Lyme patient.
The Lyme Disease Resource Center’s mission is to educate patients and their care partners about tick-borne disease, treatment options, and community resources. We accomplish this by providing a local office with a safe and confidential environment in which clients may make informed decisions about treatment and support options. A wide variety of free services are offered providing the skills to navigate the medical, government and social issues surrounding Lyme disease, as well as holistic therapies for both Lyme patients and their care partners.
Individuals living with chronic or acute Lyme Disease and/or other tick-borne illnesses, their care partners and those contacting the LDRC are provided with support and education. The LDRC offers benefits to an underserved population of individuals dealing with a complicated disease, and the resulting social, physical and economic impact of chronic illness. These individuals are guided to available resources in the community, and offered participation in free activities offered by the center: support groups, holistic therapies and a lending library to provide avenues for healing not provided by traditional medicine and workshops to increase understanding of the issues surrounding chronic and acute health problems.
During hours of operation, the Northampton, Massachusetts based center is staffed by volunteers made up of professional social workers, Lyme patient and care partner peers, and licensed health care professionals familiar with the issues surrounding, disability, care giving, Lyme Disease and other tick-borne illness. Volunteers are interviewed by the LRDC Board of Directors or the Executive Director, must undergo a CORI check, and supply a resume with references. Volunteers are either recruited from the community, via LinkedIn, recommended to the Board of Directors, or have expressed a desire to assist in the center’s mission.
About Lyme Disease
Lyme Disease is thought to be caused by the spirochete (a spiral shaped bacteria), Borrelia burgdorferi, which is similar to the syphilis organism. Lyme Disease does not discriminate by income, gender, age, or culture. Current climate changes are creating a higher risk for infection due to an increased tick population.
According to the CDC:
Lyme Disease is the fastest growing vector-borne, infectious disease in the United States.
The number of cases reported annually has increased nearly 25x since national surveillance began in 1982.
CDC estimates of new Lyme Disease Cases in the US:
Per Month: 25,000
Per Week: 5,770
Per Day: 822
Per Hour: 34