Resources

The Lyme Disease Resource Center, Inc. offers the resources listed below as well as personalized recommended resources if you contact us with questions that you can’t find an answer to here on our website.

Disclaimer: Reference herein to any specific organizations, or service by trade name, trademark, or otherwise, does not necessarily constitute or imply its endorsement, recommendation, or favoring by the Lyme Disease Resource Center. Descriptions are copied from individual web sites. Information is not intended to treat, diagnose, cure or prevent any disease. All content provided is for informational purposes only. Always seek the advice of your physician before making any treatment decisions.

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International Lyme and Associated Diseases Society (ILADS)
A nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. www.ilads.org

LymeDisease.org
A non-profit corporation that is a central voice for Lyme patients
across the nation through advocacy, education and research.
Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing
the Lyme disease arena in public policy, advocacy, and science. www.lymedisease.org

Global Lyme Alliance
“…formed by the merger of Lyme Research Alliance (LRA) and Tick-Borne Disease Alliance (TBDA), is a leading private nonprofit organization in the United States dedicated to finding a cure and accurate test for Lyme disease as well as educating physicians and the public about the dangers of Lyme. Today GLA has gained national prominence for its commitment to changing the course of Lyme disease by funding ground-breaking research, while expanding education programs for the general public and physicians.” https://globallymealliance.org

Under Our Skin
“A chilling tale of microbes, medicine and money, this Oscar shortlisted film has changed the landscape of the Lyme epidemic, bringing unprecedented awareness in an engaging and accessible way. The definitive record of the Lyme controversy, UNDER OUR SKIN exposes a hidden story of medical and scientific malfeasance and neglect… The newly released Director’s Cut includes 15-minutes of restored footage, re-edited scenes and character updates. (100 min.).” www.underourskin.com/film

Under Our Skin 2: Emergence
“In this dramatic follow-up to the widely acclaimed UNDER OUR SKIN, EMERGENCE takes the viewer on a journey from horror to hope. We witness the emerging epidemic of Lyme disease as infection and education spread globally. We watch as the truth emerges about the disease’s persistence and reach, about promising new research, and about medical collusion and conflicts of interest that continue to impede progress. We revisit the characters from UNDER OUR SKIN as they emerge into better health, reclaiming their lives and dignity, and offering hope to the legions now suffering. (65 min., © 2014 Open Eye Pictures)” www.underourskin.com/sequel

TickEncounter Resource Center
“The TickEncounter Resource Center promotes tick-bite protection and tickborne disease prevention by engaging, educating, and empowering people to take action.”
www.tickencounter.org

Regional Tick-Borne Disease Resource Center
Regional Tick-Borne Disease Resource Center at Stony Brook Southampton Hospital educates the public, promotes collaboration in the medical community, and facilitates access to diagnosis and treatment of tick-borne diseases. www.southamptonhospital.org/services/tick-borne-disease-resource-center

Lyme and Tick-Borne Disease Research Center
“The Lyme and Tick-Borne Diseases Research Center was established as the first academic research center in the country to focus multidisciplinary research on chronic Lyme disease. In recognition that a growing number of patients experience ongoing or relapsing symptoms after having been treated for Lyme disease, in recognition that diagnostic tests often do not provide definitive information regarding the presence or absence of infection, and in recognition that there are multiple possible mechanisms by which symptoms persist, the mission of this center has a particular focus on identifying better diagnostic assays, better treatments, and a better pathophysiologic understanding of the mechanisms of symptom persistence.” www.columbia-lyme.org

The Dean Center for Tick Borne Illness
“The Dean Center for Tick Borne Illness is a specialized clinical and research program designed to improve the lives of people suffering from tick borne illnesses including Lyme disease. As part of the Spaulding Rehabilitation Network, we combine research and innovative clinical practice, to individualize your treatment while constantly seeking ways to battle this growing epidemic.”
http://spauldingrehab.org/research-and-clinical-trials/lyme-disease

Lyme Disease Association, Inc.
“The Lyme Disease Association, Inc. (LDA) is designated by IRS as a public charity operating under 501(c)(3) non-profit status. Its mission is promoting awareness of and controlling the spread of Lyme and other tick-borne diseases (TBD) and their complications through education and other means; raising and distributing funds for Lyme and tick-borne diseases (TBD) research, education and other related Lyme and TBD issues; assisting under privileged patients in connection with Lyme and other TBD. ” www.lymediseaseassociation.org

Living with Lyme
Website resource created by Cindy Kennedy, Nurse Practitioner, Wife, Mother and Lyme Disease sufferer. “People with Lyme disease, and those closest to them, are encouraged to learn how to advocate for themselves. This website, and my educational podcasts, are meant to help with that process.” http://livingwithlyme.us

Hidden Disabilities

DiversityInc on Hidden Disabilities:
‘But You Look So Good!’ and 7 Other Things NOT to Say to a Person With a Non-Visible Disability
“If you have a friend, relative or coworker with an illness or disability that isn’t obvious,
you may think you’re doing the right thing by saying he or she “looks so good.”
You can’t even tell the person has a disability, and that’s a good thing, right? Wrong.”
www.diversityinc.com/diversity-and-inclusion/but-you-look-so-good-and-7-other-things-not-to-say-to-a-person-with-a-non-visible-disability

ButYouDontLookSick.com
“The mission of ButYouDontLookSick.com is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone. We believe that our medical circumstances have put us in a unique and understanding position, so that we can help each other through similar difficult times. We hope the information and community on our site can aid people in leading better lives through knowledge, networking, friendship and most of all support.” www.butyoudontlooksick.com

Invisible Disabilities Association
“The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit.” www.invisibledisabilities.org

The Spoon Theory written by Christine Miserandino
“Please take the time to read Christine Miserandino’s personal story and analogy of what it is like to live with sickness or disability.”
www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory

Prevention

Ecological Landscaping Association
“Ecological Landscaping Association (ELA) was founded in 1992. We advocate for environmentally responsible stewardship of land and natural resources in landscaping and horticultural practices of both professionals and the public. Through education, collaboration, and networking, ELA promotes the design, installation, and maintenance of landscapes that are guided by a knowledge of and respect for natural ecosystems.” www.ecolandscaping.org

TickEncounter Resource Center
“The TickEncounter Resource Center promotes tick-bite protection and tickborne disease prevention by engaging, educating, and empowering people to take action.”
Protect your yard from ticks: www.tickencounter.org/prevention/protect_your_yard
Protect your pets from ticks: www.tickencounter.org/prevention/protect_your_pets
Protect yourself from ticks: www.tickencounter.org/prevention/protect_yourself

EPA: Find the Insect Repellent that is Right for You
A search tool that allows you to find insect repellents that are safe and effective.
www.epa.gov/insect-repellents/find-insect-repellent-right-you

Tick Testing: University of Massachusetts Laboratory of Medical Zoology
101 Fernald Hall
UMass Amherst 01003
info@tickreport.com
413-545-1057
www.tickdiseases.org

Centers for Disease Control (CDC)
Preventing tick bites on people: www.cdc.gov/lyme/prev/on_people
Preventing tick bites on pets: www.cdc.gov/lyme/prev/on_pets
Preventing ticks in the yard: www.cdc.gov/lyme/prev/in_the_yard

Contact

Office: 413-588-7388
info@lymedrc.org

Location

Lyme Disease Resource Center, Inc.
243 King St. Suite 248
Northampton, MA 01060