Resources
The Lyme Disease Resource Center, Inc. offers the resources listed below as well as personalized recommended resources if you contact us with questions that you can’t find an answer to here on our website.
Disclaimer: Reference herein to any specific organizations, or service by trade name, trademark, or otherwise, does not necessarily constitute or imply its endorsement, recommendation, or favoring by the Lyme Disease Resource Center. Descriptions are copied from individual web sites. Information is not intended to treat, diagnose, cure or prevent any disease. All content provided is for informational purposes only. Always seek the advice of your physician before making any treatment decisions.
Associations and Research Institutes
International Lyme and Associated Diseases Society (ILADS)
A nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. www.ilads.org
LymeDisease.org
A non-profit corporation that is a central voice for Lyme patients
across the nation through advocacy, education and research.
Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing
the Lyme disease arena in public policy, advocacy, and science. www.lymedisease.org
Global Lyme Alliance
“…formed by the merger of Lyme Research Alliance (LRA) and Tick-Borne Disease Alliance (TBDA), is a leading private nonprofit organization in the United States dedicated to finding a cure and accurate test for Lyme disease as well as educating physicians and the public about the dangers of Lyme. Today GLA has gained national prominence for its commitment to changing the course of Lyme disease by funding ground-breaking research, while expanding education programs for the general public and physicians.” https://globallymealliance.org
Stony Brook Southhampton Hospital Regional Tick-Borne Disease Resource Center
Regional Tick-Borne Disease Resource Center at Stony Brook Southampton Hospital educates the public, promotes collaboration in the medical community, and facilitates access to diagnosis and treatment of tick-borne diseases. www.southamptonhospital.org/services/tick-borne-disease-resource-center
Columbia University Lyme and Tick-Borne Disease Research Center
“The Lyme and Tick-Borne Diseases Research Center was established as the first academic research center in the country to focus multidisciplinary research on chronic Lyme disease. In recognition that a growing number of patients experience ongoing or relapsing symptoms after having been treated for Lyme disease, in recognition that diagnostic tests often do not provide definitive information regarding the presence or absence of infection, and in recognition that there are multiple possible mechanisms by which symptoms persist, the mission of this center has a particular focus on identifying better diagnostic assays, better treatments, and a better pathophysiologic understanding of the mechanisms of symptom persistence.” www.columbia-lyme.org
Hidden Disabilities
Invisible Disabilities Association
“The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit.” www.invisibledisabilities.org
The Spoon Theory written by Christine Miserandino
“Please take the time to read Christine Miserandino’s personal story and analogy of what it is like to live with sickness or disability.”
www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory
Prevention
Ecological Landscaping Association
“Ecological Landscaping Association (ELA) was founded in 1992. We advocate for environmentally responsible stewardship of land and natural resources in landscaping and horticultural practices of both professionals and the public. Through education, collaboration, and networking, ELA promotes the design, installation, and maintenance of landscapes that are guided by a knowledge of and respect for natural ecosystems.” www.ecolandscaping.org
TickEncounter Resource Center
“The TickEncounter Resource Center promotes tick-bite protection and tickborne disease prevention by engaging, educating, and empowering people to take action.”
Protect your yard from ticks: www.tickencounter.org/prevention/protect_your_yard
Protect your pets from ticks: www.tickencounter.org/prevention/protect_your_pets
Protect yourself from ticks: www.tickencounter.org/prevention/protect_yourself
EPA: Find the Insect Repellent that is Right for You
A search tool that allows you to find insect repellents that are safe and effective.
www.epa.gov/insect-repellents/find-insect-repellent-right-you
Tick Testing
ATTN: Tick Testing MedZu Inc. 29C Cottage St. Amherst, MA 01002
[email protected]
413-545-1057
www.TickReport.com